Mindfulness can feel cheesy and it is definitely pushed in problematic and inappropriate ways, but, as annoying as it is, it actually works (to some degree)! Here’s an exercise I find helps the most people and it comes from a type of therapy known as Acceptance and Commitment Therapy.

Leaves on a stream is a great evidence-based mindfulness exercise and here are multiple versions at varying lengths:
3-minute version: https://www.youtube.com/watch?v=r1C8hwj5LXw 
2-minute version: https://www.youtube.com/watch?v=x4Zt1ZBzMps
6-minute version: https://www.youtube.com/watch?v=1yQX1y7zMAg 

Cefaly TENS device that stimulates the trigeminal nerve and has been demonstrated to reduce the frequency and intensity of migraines
www.cefaly.com 

Vibrators
A compact and powerful bullet for targeted pain relief: https://amzn.to/3XS2x2f 
https://www.wired.com/story/wired-health-hub-why-vibrating-your-body-the-right-way-could-relieve-migraines/

Compression wear - https://amzn.to/4f0aIQI 

SaltStick Vitassium - https://amzn.to/41d25ip 

BedJet3 (with the cloud sheet is best) - great for night sweats and temperature dysregulation - https://amzn.to/3ZLS76Y 

Saltstick Vitassium - https://amzn.to/41d25ip 

Guava - great system for integrating all health records and tracking symptoms and it runs autocorrelations on your health data to let you know what activities or environmental factors seem to impact symptoms - free:  https://guavahealth.com/  

Oura Ring - great wearable that holds charge for days that tracks sleep, body temp, cycle, activity, stress, and symptoms - https://amzn.to/3TMR0jB 

BedJet3 - great for circadian rhythm modulation and night sweats Link: https://amzn.to/3ZLS76Y 

Warning for the below: Light box (please only use under provider guidance and follow manufacturer instructions):
Alaska Northern Lights - NorthStar 10,000 lux at 24” from eyes
https://www.alaskanorthernlights.com/
https://a.co/d/bxL2Sx9

Carex - Day-Light Sky (DL2000) 11,000 lux at 12” from eyes - https://a.co/d/iFKdKs2 

NatureBright - BuddyLux 10,000 lux at 11” and 7,000 lux at nearly 16” from eyes - https://naturebright.com/products/buddylux-group-light-therapy-panel 

Blackout blinds - These affordable durable paper blinds can be fit to almost any window and are highly effective at blocking out light  https://amzn.to/3OFRoxm 
 

Range of motion restricting/posture correcting neck brace (this does not provide support but works as a tactile reminder to keep appropriate posture and limit ROM temporarily until a safe range of motion can be determined with the help of a PT): https://amzn.to/4iom5EL 

Inflatable neck brace (this device is intended for traction, which is generally not recommended for CCI, but if it is only partially inflated it can function as a sort of neck brace): https://amzn.to/3ZEhE1w 

Horizontal work station set up:
This laptop bed tray: https://amzn.to/4gmuYNx
Plus fastener tape to secure your device to allow you to work while lying flat: https://amzn.to/3CWJQ6T
This device will hold a phone or tablet overhead while lying flat: https://amzn.to/3VoQ4m2 
Car head/neck support pillow - https://amzn.to/41i6OPI 
Magnesium foam - https://amzn.to/4iwExeG 

 

Nerve pain foam - https://amzn.to/3ZdFdN6 

Facial Pain Association - https://www.facepain.org 
Rapid-Acting, As-Needed Medications for Trigeminally-Mediated Pain by Dr. Wolfgang Liedtke, MD, PhD:
https://content.facepain.org/wp-content/uploads/2024/06/29105605/Rapid-Acting-Medications.pdf  

Mast Cell Disease Society patient resource guide:
https://tmsforacure.org/wp-content/uploads/2023/03/TMS_Full-Patient-Guide_r6.pdf 

Cromolyn nasal spray - cromolyn is often used to help manage MCAS orally yet some individuals report benefitting from using a nasal spray version which also appears to be better tolerated - https://amzn.to/3D1WjGo 

Diamine oxidase (DAO) - helps to break down histamine in the gut and some with MCAS report benefitting from taking it just prior to eating or being exposed to high histamine foods (left overs, alcohol, fermented foods, etc.) - https://amzn.to/3ZkC8uK 

Hack Your Health: The Secrets of Your Gut: https://www.netflix.com/title/81436688#:~:text=Delve%20into%20the%20digestive%20system,in%20our%20overall%20well%2Dbeing 

Zoe - a nutrition program that is customized to you based on your blood sugar and blood fat responses and your gut microbiome; provides great education on nutrition in a digestible format https://zoe.com 

Accessible genetic testing:
Invitae - connective tissues disorders panel:
https://www.invitae.com/us/providers/test-catalog/test-434340 

What is EDS?
https://www.ehlers-danlos.com/what-is-eds/ 

Amazon Echo devices: https://amzn.to/4eXNieI 

Black Girl, Lost Keys: https://blackgirllostkeys.com 

IOCDF is a great source for information on OCD and related condition and a great place to find knowledgeable providers- www.iocdf.org

Podcasts/Videos:
Invisibilia: The Secret History of Thoughts (dark thoughts section)
https://www.npr.org/programs/invisibilia/375927143/the-secret-history-of-thoughts

The Daily: The Fear Facer update
https://www.nytimes.com/2022/10/14/podcasts/the-daily/ocd-anxiety-kids.html

Uncovering OCD: The Truth About Obsessive Compulsive Disorder:
https://www.youtube.com/watch?v=h1vjxZTALNg 

Unstuck:
https://www.ocdkidsmovie.com/ocdresources 

AskJan is a website geared toward helping disabled people in the US navigate requesting and obtaining workplace accommodations - it is a great resource for accommodation ideas and even provides templates and information relating to how to make an accommodation request - Www.AskJan.org 

National Deaf Children’s Society list of resources for becoming more Deaf aware:
https://www.ndcs.org.uk/get-involved/become-more-deaf-aware/ 

Accessible Spaces: A Fragrance-Free Toolkit from UCLA:
https://csw.ucla.edu/toolkit 

Accessible travel:
https://accessiblego.com/home 

Red Cross - how to prepare for emergencies - https://www.redcross.org/get-help/how-to-prepare-for-emergencies/inclusive-preparedness-resources.html

US Dept of Health and Human Services: Emergency preparedness for persons with disabilities - https://www.hhs.gov/civil-rights/for-individuals/special-topics/emergency-preparedness/resources-persons-disabilities/index.html 

Ready.gov’s disability page: https://www.ready.gov/disability 

Emergency preparedness for people with paralysis:
https://www.christopherreeve.org/community/about-us/press-releases/the-christopher-dana-reeve-foundation-releases-emergency-preparedness-for-people-with-paralysis-best-practices/ 

Check out resources at your local Center for Independent Living
https://acl.gov/programs/centers-independent-living/list-cils-and-spils 

From wildfires to climate disasters to industrial accidents to disease spread to home repairs, it’s important to consider your respiratory health. Elastomeric respirators are surprisingly comfortable, can be purchased relatively cheaply, and are good to have on hand in the event that you need them. That said, purchasing them and figuring out what filter you might need can be overwhelming. Here’s a document from 3M that nicely lays out what types of filters you need for various pollutants:
https://multimedia.3m.com/mws/media/40744O/3m-respirator-cartridge-and-filter-selection-poster.pdf?fbclid=IwZXh0bgNhZW0CMTEAAR3CU8WT1q6VhdLgKCzJDvSq6E7tFj6forDo6s8mS5dJmPJQ0kb3rIm1VlA_aem_Wmn0jSRWNhBQIAGSJ5qv9Q

This article explains the different types of binocular vision dysfunction and some of the symptoms it can cause and it walks through a way to quickly self-assess at home:
https://www.verywellhealth.com/binocular-vision-dysfunction-8609927 

Exercises, tips, and guidance for how to improve binocular vision:
https://www.wikihow.com/Improve-Binocular-Vision 

A site that uses AI to help you generate an appeal to get health insurance coverage: https://fighthealthinsurance.com 

Patient Advocate Foundation: https://www.patientadvocate.org 

Tips for self advocacy in healthcare - https://inclusionmelbourne.org.au/projects/spectrum/ 

Guava Health not only pulls your medical records and health tracking device data together in one place and allows you to easily track symptoms in their accessible app and offers a service to help you prepare for medical appointments by pulling together relevant data to present to your provider:
https://guavahealth.com 

Neurology:
NeuraHealth
Virtual neurology clinic providing specialty care across the US: https://www.neurahealth.co 

Genetic testing:
Invitae
www.invitae.com