National Deaf Children’s Society list of resources for becoming more Deaf aware:
https://www.ndcs.org.uk/get-involved/become-more-deaf-aware/ 

Accessible Spaces: A Fragrance-Free Toolkit from UCLA:
https://csw.ucla.edu/toolkit 

Accessible travel:
https://accessiblego.com/home 

AskJan is a website geared toward helping disabled people in the US navigate requesting and obtaining workplace accommodations - it is a great resource for accommodation ideas and even provides templates and information relating to how to make an accommodation request - Www.AskJan.org 

Amazon Echo devices: https://amzn.to/4eXNieI 

Black Girl, Lost Keys: https://blackgirllostkeys.com 

This article explains the different types of binocular vision dysfunction and some of the symptoms it can cause and it walks through a way to quickly self-assess at home:
https://www.verywellhealth.com/binocular-vision-dysfunction-8609927 

Exercises, tips, and guidance for how to improve binocular vision:
https://www.wikihow.com/Improve-Binocular-Vision

Vibrator 
https://amzn.to/3XS2x2f 

Red light/photobiomodulation:
Fringe produces high quality photobiomodulation devices. Dr. Antler loves their red light wrap for joint pain and cramps:
https://fringeheals.com/shop/light/red-light-therapy-wrap-wireless/ref/240/?campaign=Wrap 

Resonant breathing (also known as HRV biofeedback if paired with HRV monitoring):
A free app for this can be found here:
https://pacedbreathing.app  
Research supports setting it to 4 seconds in breath, 6 seconds out, with no pauses - diaphragmatic breathing

Tracking your pain and communicating it to your providers can be very challenging, yet this pain scale from the VA is better than most and might be helpful as you try to figure out how to determine how bad your pain is and to track how it changes over time:
https://www.va.gov/PAINMANAGEMENT/docs/DVPRS_2slides_and_references.pdf  

How does your brain respond to pain - TED:
https://m.youtube.com/watch?v=I7wfDenj6CQ 

Cozy video games:
Cozy games can be a great distraction technique when in pain as they are generally slower paced, not stressful, and have beautiful imagery with gameplay that is engaging enough to distract, but not so challenging that you are unable to play when struggling. Research suggests that engaging your brain in an alternative activity is an effective way to temporarily decrease pain, and everyone with pain knows that even making a tiny dent in it or getting a small break can feel like a big deal. Here are a few great cozy games to get you started:
Coral Island - https://blog.stairwaygames.com/coral-island 
Spiritfarer - https://thunderlotusgames.com/games/spiritfarer/ 
Donut Country - https://donutcounty.com/ 

Mindfulness:
Mindfulness can feel cheesy and it is definitely pushed in problematic and inappropriate ways, but, as annoying as it is, it actually works (to some degree)! Here’s an exercise I find helps the most people and it comes from a type of therapy known as Acceptance and Commitment Therapy.
Leaves on a stream is a great evidence-based mindfulness exercise and here are multiple versions at varying lengths:
3-minute version: https://www.youtube.com/watch?v=r1C8hwj5LXw 
2-minute version: https://www.youtube.com/watch?v=x4Zt1ZBzMps
6-minute version: https://www.youtube.com/watch?v=1yQX1y7zMAg 
9-minute version: https://www.youtube.com/watch?v=H4AVChkm3G0 

Unfortunately, the COVID pandemic never ended. Covid is still spreading at high rates at multiple points most years. The good news is that we have a better understanding of the virus now than we did at the start and we have great tools to mitigate spread. The bad news is that through the more recent research, we’ve uncovered that COVID is not a harmless disease, and even if death isn’t a primary risk for most people, long COVID and other longer term symptoms and conditions are a substantial concern. Long COVID rates range from 1.7-77.7%. Risk of LC increases with each infection. COVID has been found to be a multisystemic neurovascular condition that has the potential and ability to damage almost if not all organs in the body, including the brain. Disabled and chronically ill people are unfortunately more likely to experience these effects and the on-going pandemic continues to disproportionately impact disabled and BIPOC communities.

To learn more about COVID-19, you can check out the following resources:
https://libguides.mskcc.org/CovidImpacts 
https://www.covidsafecampus.org/health-ed
https://whn.global
https://peoplescdc.org 

What is Post-Exertional Malaise? via Johns Hopkins:
https://www.hopkinsmedicine.org/-/media/johns-hopkins-childrens-center/documents/specialties/adolescent-medicine/cfs-pem-info.pdf 

Pacing and Management Guide for ME/CFS via ME Action:
http://www.meaction.net/wp-content/uploads/2021/02/Pacing-and-Management-Guide-for-ME_CFS-9.pdf

Long COVID Essentials resource sheet series by The Sick Times and Long COVID Justice:
https://longcovidjustice.org/long-covid-essentials/

Robin - a video game on ME/CFS:
https://store.steampowered.com/app/671720/Robin/?fbclid=IwZXh0bgNhZW0CMTEAAR3E82EMMR2lpYsn6AWWA6NV5ZD38h_4Kwyu-_UWPzwSI00QcFc5Bmw3iTM_aem_XR37epjQ5L3khGzrS_ou8g 

Range of motion restricting/posture correcting neck brace (this does not provide support but works as a tactile reminder to keep appropriate posture and limit ROM temporarily until a safe range of motion can be determined with the help of a PT): https://amzn.to/4iom5EL 

Inflatable neck brace (this device is intended for traction, which is generally not recommended for CCI, but if it is only partially inflated it can function as a sort of neck brace): https://amzn.to/3ZEhE1w 

Horizontal work station set up:
This laptop bed tray: https://amzn.to/4gmuYNx
Plus fastener tape to secure your device to allow you to work while lying flat: https://amzn.to/3CWJQ6T

This device will hold a phone or tablet overhead while lying flat: https://amzn.to/3VoQ4m2 
Car head/neck support pillow - https://amzn.to/41i6OPI 
Magnesium foam - https://amzn.to/4iwExeG 

 

Compression wear - https://amzn.to/4f0aIQI
 
SaltStick Vitassium - https://amzn.to/41d25ip 

BedJet3 (with the cloud sheet is best) - great for night sweats and temperature dysregulation:
https://amzn.to/3ZLS76Y 

Saltstick Vitassium - https://amzn.to/41d25ip 

Accessible genetic testing: Invitae - connective tissues disorders panel - https://www.invitae.com/us/providers/test-catalog/test-434340

What is EDS? -https://www.ehlers-danlos.com/what-is-eds/ 

Dr. Melissa Koehl, DPT - A phenomenal physical therapist who has EDS who makes educational content and has an great course for hypermobile people - https://www.chimera-health.com/

 Vilim ball
https://vilimed.com/shop/
An AI-powered vibrating ball that can significantly reduce tremors for an hour or more with just 10 minutes of use

Red Cross - how to prepare for emergencies - https://www.redcross.org/get-help/how-to-prepare-for-emergencies/inclusive-preparedness-resources.html

US Dept of Health and Human Services: Emergency preparedness for persons with disabilities - https://www.hhs.gov/civil-rights/for-individuals/special-topics/emergency-preparedness/resources-persons-disabilities/index.html 

Ready.gov’s disability page: https://www.ready.gov/disability 

Emergency preparedness for people with paralysis:
https://www.christopherreeve.org/community/about-us/press-releases/the-christopher-dana-reeve-foundation-releases-emergency-preparedness-for-people-with-paralysis-best-practices/ 

Check out resources at your local Center for Independent Living
https://acl.gov/programs/centers-independent-living/list-cils-and-spils 

From wildfires to climate disasters to industrial accidents to disease spread to home repairs, it’s important to consider your respiratory health. Elastomeric respirators are surprisingly comfortable, can be purchased relatively cheaply, and are good to have on hand in the event that you need them. That said, purchasing them and figuring out what filter you might need can be overwhelming. Here’s a document from 3M that nicely lays out what types of filters you need for various pollutants:
https://multimedia.3m.com/mws/media/40744O/3m-respirator-cartridge-and-filter-selection-poster.pdf?fbclid=IwZXh0bgNhZW0CMTEAAR3CU8WT1q6VhdLgKCzJDvSq6E7tFj6forDo6s8mS5dJmPJQ0kb3rIm1VlA_aem_Wmn0jSRWNhBQIAGSJ5qv9Q 

Hack Your Health: The Secrets of Your Gut: https://www.netflix.com/title/81436688#:~:text=Delve%20into%20the%20digestive%20system,in%20our%20overall%20well%2Dbeing. 

Zoe - a nutrition program that is customized to you based on your blood sugar and blood fat responses and your gut microbiome; provides great education on nutrition in a digestible format
https://zoe.com 

Guava - great system for integrating all health records and tracking symptoms and it runs autocorrelations on your health data to let you know what activities or environmental factors seem to impact symptoms - free:
https://guavahealth.com/ 

Oura Ring - great wearable that holds charge for days that tracks sleep, body temp, cycle, activity, stress, and symptoms:
https://amzn.to/3TMR0jB 

Mast Cell Disease Society patient resource guide:
https://tmsforacure.org/wp-content/uploads/2023/03/TMS_Full-Patient-Guide_r6.pdf 

Cromolyn nasal spray - cromolyn is often used to help manage MCAS orally yet some individuals report benefitting from using a nasal spray version which also appears to be better tolerated
https://amzn.to/3D1WjGo 

Diamine oxidase (DAO) - helps to break down histamine in the gut and some with MCAS report benefitting from taking it just prior to eating or being exposed to high histamine foods (left overs, alcohol, fermented foods, etc.) 
https://amzn.to/3ZkC8uK 

Crisis warm lines that do not use police intervention (from https://www.inclusivetherapists.com/contact#crisis ):
Blackline:
Call or text: 1-800-604-5841
Peer support and counseling prioritizing BIPOC, with an LGBTQ+ Black Femme Lens. "We do not trace or send any type of intervention under any circumstances without consent."

Trans Lifeline:
US: 1-877-565-8860; Canada: 1-877-330-6366
Oprime 2 para hablar con alguien en español; See hours here; Trans peer support for Trans community that’s been "divested from police since day one. Run by and for Trans people."

Wildflower Alliance Peer Support Line:
1-888-407-4515; See hours here
Wildflower Alliance Peer Support Line: Warmline answered by a trained peer supporters. "We do not trace or send any type of intervention under any circumstances without consent."

Strong Hearts Native Helpline (24/7):
Peer advocate crisis support specifically for people experiencing intimate partner violence
Call 24/7: 1-844-762-8483 or chat online
24/7 confidential and anonymous culturally-appropriate domestic and sexual violence helpline for Native Americans. "advocates do not request or record the contact’s identification and/or address."

Thrive Lifeline (24/7):
Text 24/7: 1-313-662-8209
Trans-led and operated, focusing on people with intersection marginalized identities. Does not "engage in non-consensual active rescue."

Cefaly
TENS device that stimulates the trigeminal nerve and has been demonstrated to reduce the frequency and intensity of migraines
www.cefaly.com 

Vibrators
A compact and powerful bullet for targeted pain relief:
https://amzn.to/3XS2x2f 
https://www.wired.com/story/wired-health-hub-why-vibrating-your-body-the-right-way-could-relieve-migraines/

A site that uses AI to help you generate an appeal to get health insurance coverage - https://fighthealthinsurance.com 

Patient Advocate Foundation - https://www.patientadvocate.org 

Tips for self advocacy in healthcare - https://inclusionmelbourne.org.au/projects/spectrum/ 

Chronic Disease Coalition - patient support and advocacy - https://www.facebook.com/ChronicRights

Guava Health not only pulls your medical records and health tracking device data together in one place and allows you to easily track symptoms in their accessible app and offers a service to help you prepare for medical appointments by pulling together relevant data to present to your provider:
https://guavahealth.com 

IOCDF is a great source for information on OCD and related condition and a great place to find knowledgeable providers- www.iocdf.org
Podcasts/Videos:
Invisibilia: The Secret History of Thoughts (dark thoughts section)
https://www.npr.org/programs/invisibilia/375927143/the-secret-history-of-thoughts
The Daily: The Fear Facer update
https://www.nytimes.com/2022/10/14/podcasts/the-daily/ocd-anxiety-kids.html
Uncovering OCD: The Truth About Obsessive Compulsive Disorder:
https://www.youtube.com/watch?v=h1vjxZTALNg 
Unstuck:
https://www.ocdkidsmovie.com/ocdresources 

BedJet3 - great for circadian rhythm modulation and night sweats https://amzn.to/3ZLS76Y 

Light box (please only use under provider guidance and follow manufacturer instructions):
Alaska Northern Lights - NorthStar 10,000
10,000 lux at 24” from eyes
https://a.co/d/bxL2Sx9

Carex - Day-Light Sky (DL2000)
11,000 lux at 12” from eyes
https://a.co/d/iFKdKs2 

NatureBright - BuddyLux
10,000 lux at 11” and 7,000 lux at nearly 16” from eyes
https://naturebright.com/products/buddylux-group-light-therapy-panel 

Blackout blinds:
These affordable durable paper blinds can be fit to almost any window and are highly effective at blocking out light - https://amzn.to/3OFRoxm 

SleepGuard biofeedback device:
https://mysleepguard.com/solution/ 
Research has found that biofeedback is an appropriate and effective treatment for nighttime grinding (also known as bruxism) and that it is more effective than traditional night guards

Nerve pain foam - https://amzn.to/3ZdFdN6 
Facial Pain Association - https://www.facepain.org 
Rapid-Acting, As-Needed Medications for Trigeminally-Mediated Pain by Dr. Wolfgang Liedtke, MD, PhD:
https://content.facepain.org/wp-content/uploads/2024/06/29105605/Rapid-Acting-Medications.pdf 

NeuraHealth - Virtual neurology clinic providing specialty care across the US: https://www.neurahealth.co  
Invitae - online genetic testing service: www.invitae.com